ABOUT MY PERSONAL DATA
WHY WILL MY DATA BE COLLECTED?
Sharing your data in this programme will allow you to receive a report detailing the cardiac events recorded during the monitoring period and help you better understand the status of your heart health. Sharing your data will help us to answer key research questions about cardiac arrhythmias and their possible prevention for high performance athletes and specifically professional football players. That includes determining whether longer-duration ECG monitoring can be used as an effective complementary test to better identify heart conditions at an early stage for professional football players.
WHAT DATA WILL BE COLLECTED?
If you join the programme, we'll ask you to share different kinds of data and information. This will include:
- Information you enter in the health consent and questionnaire, including your contact information, demographic information, and general health history and habits.
- Data from the non-invasive recording device used during the monitoring period, including electrocardiographic recordings and electrical signals
- Information you enter in a feedback survey after you have completed the monitoring
Full details are included in the consent form which you will be required to read and sign if you would like to join the programme.
WHO WILL HAVE ACCESS TO MY DATA?
Only IDOVEN will have access to personalised personal and medical data, for the purpose of the analysis and report. Players will remain in full control over their data and no personalised medical records will be shared with any football stakeholders (clubs, leagues, federations or unions) without their consent. For study and research purpose, fully anonymised data will be shared with FIFPRO.
HOW WILL MY DATA BE KEPT SECURE?
IDOVEN is compliant with relevant ISO standards for information, cloud, data privacy and cyber security, including:
- ISO 27001 Information Security Management System
- ISO 27017 Security Standard for Cloud Service Providers
- ISO 27018 Protection of Personal Data in the Cloud
- ISO 27701 Protection of Privacy as Potentially Affected by the Processing of Personally Identifiable Information (PII)
IDOVEN is compliant with GDPR and Spanish LOPD-GDD to ensure the proper processing of personal data
HOW LONG WILL MY DATA BE STORED?
Your personal information processed for the study, as well as the results of the same, will be kept by IDOVEN for a minimum period of five years from the date of the issuing of the report and in order to comply with the applicable regulations. Likewise, the data may be kept duly blocked for the exercise of legal actions or the defence of claims. Once this period has elapsed, if the right to erasure has not been exercised, the data will be anonymised for use for research purposes.
HOW CAN I REQUEST THE DELETION OF MY DATA ?
If you want to have access to your data, request deletion, or raise any question related to your data treatment, please contact the IDOVEN Data Protection Officer: [email protected]
WHAT IS THE “DONATE MY HEARTBEATS” PROJECT?
The Donate Your Heartbeats project is a collaboration between IDOVEN and the Iker Casillas Foundation to provide individuals the opportunity to contribute to the most advanced scientific research in preventing cardiovascular disease through the responsible sharing of information about how their hearts behave throughout their lives. Companies like Google and Banco Santander, as well as world-class athletes, have joined the initiative to donate their heartbeats in the name of science.
In order to join in this initiative, participants of the FIFPRO x IDOVEN Player Heart Monitoring Service will receive a consent form in which they will have the option (by ticking a box) to consent to donate their heartbeats and become one of the world's first heartbeat donors to support research and prevent heart problems for the most vulnerable. Specifically, IDOVEN will pseudonymise and anonymise each consenting participant’s heartbeats and the results obtained and keep them for the maximum legal period for the purposes of research, studies, scientific publications, and/or the development of new products to better detect and prevent disease.
HOW LARGE IS THE DATABASE OF HEARTBEATS DONATED TO IDOVEN?
The database of heartbeats donated to IDOVEN is continuously growing. It has more than 89,000 hours of continuous recording of the hearts of both healthy and sports people and heart patients from different European hospitals. This is equivalent to more than 343 million heartbeats. The more quality information we can teach our algorithms, the better we will be able to understand the human heart and the more accurate the medicine we will be able to deliver every day. Thanks to those of you who are helping us to make this possible.